Patient and Family Support, and CMT Research
The Hereditary Neuropathy Foundation
The Hereditary Neuropathy Foundation "... supports patients and families with critical information to improve quality of life and is dedicated to finding treatments for CMT."
Genetic Counselor Resources for The CMTer
The National Association of Genetic Counselors
"Genetic counselors are professionals who have specialized education to provide the personalized help you need as you make decisions about your genetic health. Today, there are more than 4,500 certified genetic counselors."
CMTer and Family Support, and Cutting Edge CMT Research
The Charcot-Marie-Tooth Association
The Charcot-Marie-Tooth Association "... has an incredible community of patients, families, and supportive friends—along with hundreds of experts in neurology, genetics, orthopedic surgery, physiatry, physical therapy, and podiatry."
CMTer and Family Care, Support, and CMT Research
The Muscular Dystrophy Assoication
"We're here to transform the lives of people affected by neuromuscular disease." Charcot Marie Tooth Disease is one of the many non-Muscular Dystrophies that the MDA provides for.
The Cryptid Sloth
Resources for the CMTer
Patient resources for the CMTer and family can sometimes be difficult to find, especially when the CMT world is brand new. Here, we bring together links to various resources, organizations, and entities who serve the CMT community.
Discover The Types of CMT
The Cryptid Sloth receives no financial, promotional, or endorsement support from any organization, entity, corporation, or otherwise who are listed on this page. The resources provided on this page are provided as a convenience to the CMTer and are provided for informational purposes only.
The Cryptid Sloth principle, Kenneth Raymond, is a non-compensated volunteer member of the CMTA Advisory Board.